It’s been a very long day. Sadly, I have horrible news. The spot that was seen on the last scan has grown and become more defined.
Even more horrifying, is that there is a larger spot that grew from zero to large in a matter of 4 weeks time.
I had the schedule wrong, and my appointment with my neurosurgeon wasn’t until tomorrow. Thankfully, his NP is amazing and called Dr. Lang in the OR. He answered, and reviewed the scans. He was obviously not liking what he saw.
So now, we scramble for appointments. Since it grew to almost 2cm in 4 weeks, time is not on our side. I am keeping my original appointment with Dr. Lang (neurosurgeon) tomorrow, and have scheduled an appointment with my radiation oncologist (Dr. Li), who happens to come back in from vacation later today. We will then scramble to set up a gammaknife procedure as soon as possible, hopefully later this week.
I’m actually very scared this time around. It’s growing and spreading quickly. We need to stop it here. I also have a suspicion that it is being fed from somewhere else in the body. Brain lesions of AS don’t just show up out of nowhere.
So, the good? Thanks be to God, once again, for all of the little things: Dr. Ravi insisting on a short interval MRI (who knows how large it would have been in another month), thank you to me for messing up my schedule (it allowed us to get preliminary results today, and get the ball rolling for surgery), and thank you for my beautiful life, wife and children.
For now, I am scared. I am crying. My life is in a big cloud, and I cannot even think about Andrea and the boys – it just hurts my heart too much. I just want to crawl into a hole.
Please pray for a miracle, and pray for my family.
I love you all.