September 20, 2016
Good afternoon and a beautiful one at that! I hope this message finds your lives full of love and happiness. I truly hope that no matter what life throws your way that you are able to find the good and still smile. Life is bearable for the most part if you can enjoy it through trials and tribulations. Make memories and help another. We are all in this together.
I don’t often look back anymore. I don’t think about what I’ve been through for several reasons. First and foremost, it’s a lot to remember. It’s the main reason I brought my personal medical record to electronic record keeping. A quick search can find almost anything I need so I don’t need to clog what brains cells I have with all of those results and consults. Second and most important, the past is the past. There is something to be said about living life one day at a time. This applies to most everything. If life is throwing too much at us for a moment, we truly only have to worry about today, physically. The past is over and tomorrow is not here yet.
However on the rare instant I do look back, it is usually a milestone. Yesterday was such a day. Rewind 7 years ago yesterday I was undergoing my very first surgery ever against this disease. 7 years ago I was coughing up blood, had a plethora of tests and scans done, but there was no consensus on what was going on. The one thing the entire team agreed upon was that it was bleeding and needed to come out.
Fast forward to today, I’ve now had 76 rounds of chemo (including today), 2 lung surgeries with the removal of my left lung, 5 gammaknife noninvasive brain surgeries, and 1 craniotomy. We also know that it is angiosarcoma, and it is a force to be reckoned with. With your help, we are currently, once again, without visible disease on the macroscopic scan (read on any imaging techniques available today).
I’ve now seen my youngest son off to preschool when I didn’t think I would make it to my oldest son’s first day of preschool. I’ve made countless memories with my beautiful family. Thanks be to God, this has all happened while fighting this devil of a disease. We are blessed, and I will never forget that fact. We are at His mercy, always, and for that, I am forever grateful.
With that said and as I eluded to above, I am currently undergoing my 2nd keytruda immunotherapy treatment (74th treatment over). So far it has been night and day compared to chemotherapy. There are no premedications to take prior to treatment, no prescriptions to fill for after treatment, and I feel completely fine, all things considered. It just needs to work, and I hope and pray that it is.
We love you all so very much. Have an amazing day.