Once Again – NED

Sept 2 ScansHello from Houston!
I’ve been having some pretty high level and constant pain for the last month involving my left iliac / lumbar spine area with pain shooting all the way down my leg. I’m very pain tolerant, but I get more suspicious these days about anything new regarding my body. This being said, we had an impromptu T-, L-, C- MRI (MRI of the entire spine) performed. The added 1.5 hours that took threw the entire day behind. We rushed over to consult with Dr. Li and rushed to Dr. Lang shortly after. We went back to the hotel to pack and checkout, and hurried to dinner and the airport!

We can breathe now!

For some reason, NED is following us everywhere. wink emoticon Yes, we are once again –
NED!!!!!

Thanks be to God for miraculous healing and answered prayers. Dr. Lang is concerned about my sciatic issues still even though the spine MRI came back clear.

To be safe, we are going to do another short interval MRI with a PET/CT this time in about a month.

For now, let’s live our lives to the best of our ability!

YAY FOR BEING CANCER FREE ONCE AGAIN!

WE LOVE YOU ALL!

 

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CT Scan & MRI Update

I hope this message finds your lives full of love and making wonderful and long-lasting memories.

August 4 2015 MRI August 8, 2015

I am so very sorry about the delay in getting this message out. There is a reason this recent trip to Houston was scheduled during this time frame. We got the results and had to travel home on Wednesday. I arrived home Wednesday evening at 130am. I had to wake up early and finish the CADD drawings for work that I was unable to finish prior to leaving for Houston. I finished them just in time for Andrea to return home. Once home, we had to finish packing in order to head to Peoria – the whole reason for scheduling this week’s appointments early – for my brother’s wedding! We arrived into Peoria late Thursday night at about midnight.

We spent yesterday walking around and visiting Peoria, including the CAT world headquarters followed by a hands-on museum. We then went to the wedding rehearsal followed by an amazing dinner with everybody. Long story short, this is our first chance to get a message out to all of you. We so very much appreciate your patience and understanding. We’re just living our lives and making beautiful memories in the face of adversity.

Recapping first, the amazing news with the CT scan is huge. We are calling that part no sign of disease with the intent to keep an eye on what was mentioned by my local radiologist. Dr. Ravi did not see anything of concern within my one remaining lung. Praise God!

As for the MRI, it is not good or bad … yet. For the most amazing news from it, there are NO new spots thanks be to God. That is a very big thing! Unfortunately, the lesion in the left frontal lobe that was small and barely detectable and ultimately treated with Gammaknife back in May isn’t behaving the way any of us would like. As a side note, there are expected changes with any surgery. You can expect edema and possibly some increase in size (doesn’t mean growth) due to inflammation for some time after.

We had our routine one month Gammaknife MRI at the beginning of July, and the report read great concerning all treated lesions but especially the most recent SRS surgery. Concerning the left frontal lesion that was treated, it read “Redemonstration of treated bifrontal lobe lesions without any evidence of new intracranial enhancing foci to suggest intracranial disease recurrence. “

Unfortunately, the current MRI read anything but normal. Furthermore, my neurosurgeon is on FMLA for most likely another month, and his input is crucial at the moment. I have a message out to his staff, and they reached out to Dr. Lang. Ironically, he is currently in Michigan! In short, the current MRI (attached to this message), reads: “redevelopment of enhancement at the site of a previously stereotactically treated metastatic lesion within the left frontal lobe, now measuring 5.2mm.”

We saw another surgeon, and he voiced a different point of view than that of my radiation oncologist. As another side note, this is why it is critical, as a patient, to have a multidisciplinary team especially this far in the game. Every physician has seen things differently in their careers, and all are equally as important.

Dr. Demonte, neurosurgeon, clinic note:
“Current MRI of the Brain, per Dr. DeMonte, reveals a 5mm enhancing left frontal lobe lesion near the site of recent radiosurgery. He is concerned that this may be new disease versus inflammatory, radiation-induced changes.”

Dr. Li, radiation oncologist, clinic note:
“His most recent scan of the brain shows slight increased enhancement along the left frontal lobe lesion, which looks most consistent with radiation change as opposed to progression.”

I share all of this, every time, for many reasons, but no more than to show you what we are faced with almost every time. There is no right or wrong. Nobody knows so we have to make a decision with our gut and past precedence. It’s fatiguing.

I voiced my concerns to Dr. Ravi that I am not at all convinced this isn’t disease progression. He agreed, and we will wait to see what Dr. Lang’s interpretation is. For the time being, we are doing close follow up scans for both the CNS and rest of the body. In other words, 4 weeks for the next MRI to check on the status of the brain and 6 weeks for the next CT scan of the body to check it all but most importantly, to check the status of the right lung.

What now? To be as cliché as humanly possible, we live, laugh and love. It doesn’t change a thing. We hurried home from Houston, as planned, to do what was mentioned earlier, and now we are having an amazing time in Peoria.

This isn’t bad news nor is it good news. However, I would like for once to just post NED. Unfortunately, it isn’t in the cards at the moment, but it will be.

One might ask, “why does God allow this to happen?”. Honestly, if that is your thought process, you are looking at this from the wrong perspective. The answer is thank you, God, for not allowing this to be so much worse. Thank you, God, for giving me a beautiful life with a very strong woman and two amazing and HEALTHY children! Thank you for all of the wonderful memories to date and the many new memories to come. And thank you for giving me the tools to fight this disease, which includes but is not limited to, the most amazing support group ever know, present day treatments, and the most excellent of physicians.

Please pray for use to get through this month leading up to the next scans. Please pray for an amazing outcome in the next round of scans. Please pray for peace of mind and the continued ability to live life to the fullest making memories full of laughter and love. And please pray that my brother, Kyle, has an amazing day tomorrow followed by a lifetime full of love and happiness as he marries the love of his life, Abby.

John DeerAs we visited CAT world headquarters yesterday (and it was amazing), it would only be right to drive to Moline and visit the John Deere world headquarters today followed by a water park tomorrow before the wedding!

Don’t let life’s circumstances define you. You define your life and how it is lived, God willing.

August 11, 2015

The image studies came in the mail from MD Anderson yesterday. If you are a visual person like me, all you read with my update on Saturday was bla, bla, bla … not a good MRI, but not a bad MRI either … yet.

I put together a comparison of the most recent MRI (August 4, 2015) to the one month post gammaknife MRI (June 2, 2015) to show you why there is concern.

comparison

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(click image to enlarge)

You’ll want to take note of the different shading around the areas (contrast difference – enhancement – edema (bleeding/swelling)), difference in size and just the general appearance in one and not the other.

One might say the images are cut differently especially with only 24 images per series in some (multiple series in an image study). This is very correct AND very important to consider. However, I matched the 2 up as accurately as allowed by the 2 different studies. For the ones where it shows up now and not before, I was meticulous in the fact to make sure that it shows up on multiple slices (unable to show here since they are still images). This means that although the slices are not at the exact same point in comparison, by spanning multiple slices it should show up on both if it is present on both.

^^^^^what this last paragraph equates to is that I did my due diligence in selecting relevant images. I did not post inconclusive evidence when comparing where it just isn’t obvious between the two.

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Update & Request for Continued Prayers

7-27-2015scanGood evening, and thank you for all of your love and prayers. We need them, always, as does every single person.

Nothing would make me happier to say that it was a home run / slam dunk scan, but I cannot. It was remarkable, and the remarks concern my one and only lung.

3 subcentimeter lesions were mentioned within my right lung.

It is too early to tell what they are exactly, but they are big enough to be mentioned. They were also not seen on previous scans.

Could it be nothing? Absolutely. Could it be everything? More than likely, but it is out of our hands either way.

The plan is to stay the course as we always have. Fortunately, my day to day life keeps me very busy playing with and chasing kids (sometimes chasing Andrea!). In your every day John Doe with no health issues, these would probably not have been mentioned. However, my disease course is anything but normal. It’s best to catch things early.

God’s timing is perfect. He does not control the disease. He is not responsible for the disease. The disease just is. However, He has made many amazing blessings happen with timing, with how this disease has played out, with how things always come together, and the list goes on.

11750625_10206263656222988_4073803276359594511_nWith that said, I just had the perfect two vacations with my beautiful and amazing wife as well as my children. These vacations were right before this news. Why does this matter? It matters because I experienced these memories as a father and husband who was NED. That is crucial. I experienced them without the thought of cancer. I was able to laugh, run, swim, and hike without a disease care. Literally, it was as if it was just a nightmare, and we were waking up to a beautiful reality.

Furthermore, we already have appointments with my neurosurgeon, oncologist and radiation oncologist in a few days. I don’t have to stress and scramble as I have done in days past to formulate a meeting of the minds. I can relax. Yes. Relax knowing that we will be at the drawing board soon making a master battle plan. We will win the war. It’s just another battle.

Please pray for nothing to show up on the MRI next Tuesday (August 4, 2015). Please pray for peace, for options, for treatments that work, and for my family. Please pray for a long life with my family and friends.

We love you all, so very much. Hug your loved ones a little tighter for us tonight. Make memories. Forgive.

Thank you for being with us no matter what.

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Finally N.E.D. Again!

June 2015 scans1 June 2015 scans2 June 2015 scans3Thank you for all of the amazing notes and messages today. It was truly a stressful time with 3 consults and 2 scans within 1.5 days. We are now at the airport about to head home! I cannot wait to be in the arms of my family.

With that said, please take a moment to say a prayer for us. A prayer of thanks. A prayer to say thank you for providing such an exemplary medical team. A prayer to say thank you for another amazing results. To our surprise, both the MRI and PET scan were both read. The reports are still preliminary, but they both read no evidence of disease. NED!

We came. We saw. We fought. We conquered again, and we could not do it without you all!

It is truly a miracle, and only God is capable of performing such an amazing feat against such a horrible disease. We are far from being in the clear, but we have the upper hand again.

I will be going on treatment again, and it will most likely be immunotherapy. Since I do not have an active tumor to biospy, we are going to test my last tumor for specific genetic markers for different immunotherapies.

We have this. Let the fight continue! We love you all so very much. Time to celebrate and fight harder!

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Gamma Knife III

11133795_10205685153400779_8846874568860267315_nApril 30, 2015 6:22 am
All checked in and waiting in the bellows of MD Anderson to be called. One of the only times I’ll be really early for a treatment as it could help my chances of being the first patient!

I was talking with my wife on the way over, and I told her it was like taking the long walk of shame. She said sorry I had to do it alone (I came alone…my choice, Andrea will be coming later this afternoon).

I told her everyone takes the walk alone otherwise you’re just going out for breakfast. No shame in breakfast! tongue emoticon

Thank you for keeping our minds busy with all of the beautiful and heartfelt texts, emails and messages. Since I am alone, I’ll update when I can probably in this thread to make it easier.

9:57 am
Halo is on and MRI is all done. The MRI took longer than usual because they had to do extra sequences because it is so small.

Great news is it (the disease area) still remains very small. They just called up to my floor and are coming to take me down to surgery.

It’s going great so far! Thank you for the continued prayers! We love you all!

11:51 am
All done! Finished a little over an hour ago. It was only a 14 minute procedure this time. Shortest one yet! Looking forward to the days of 0 minute procedures because I’ll beat this thing! wink emoticon I have to be monitored for complications until about 1215 CT, and then I can be released!

It’s been a great day so far! Thanks be to God for always taking such great care of us and for assembling the most amazing medical team imaginable. We are blessed!

I also had the amazing opportunity as a “veteran” GammaKnifer to talk with an elderly woman who was very nervous. So nervous that she was on the brink of having to cancel her GammaKnife because of elevated blood pressure.

With that said, we had enough time to chat. I asked her what she was nervous about, and we spoke about how the whole process goes. I told her out of all the treatments and procedures this was the easiest to endure, and more importantly, it works! I chatted with her about how the treatments won’t always be easy, but they will always beat the alternative. We both have so much more life to live. Not sure if it helped her or not, but we laughed at the end. And she is currently getting her GammaKnife.

In life, use what you know and have experienced to pay it forward. Nobody fights alone!

We love you so very much!

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Gamma Knife III

11095082_10205677858818419_493213107_nTime flies when you’re having fun! First and foremost, being off of chemo has been an absolute blessing! The energy rebound has been remarkable. We hoped and prayed for clear scans in order to stop chemo, but that will happen in time, again!

Traveling to MD Anderson today and staying until Friday. GammaKnife is scheduled for tomorrow morning. As has happened with all other GammaKnife procedures, there is a pre-procedure MRI to not only map out the exact, precise location of the lesion, but to determine the status of the disease. Please join us in praying for a miracle and no disease shows up! Please pray for stable disease if it is still present and equally as important, please pray for no NEW lesions showing up. Please pray for a very successful procedure, and for peace of mind.

We love you all so very much, and thank you for all of the messages as always. You are truly amazing!

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2015 Troy Angiosarcoma Run/Walk

2014 Troy Angiosarcoma RunTo all of those who have supported and planned to attend the 3rd Annual Troy Angiosarcoma Awareness Run/Walk next month, we sincerely apologize for the lateness of this update. We realize that the race was suppose to be soon.  We meant to get this email out much sooner, but Ryan’s health has taken an unexpected turn requiring surgery.  Rest assured he will be better than okay, but for this reason, getting an event update out to you has taken some extra time.

After strong consideration and discussion between the two of us, we have decided to postpone the event until next year. Requests & demands were asked of our event that were not feasible in the time-frame allotted nor did they fit the design, layout, and overall structure of our event. To relieve stress, anxiety and tension, we ultimately and with great sadness decided upon postponing to regroup and revamp the race. We have our hearts set to hold the event in 2016 and we promise to keep you informed.

We want to thank you for your support the past 2 years. Because of YOUR SUPPORT we raised more than $46,000 with a total profit of $33,000. Those funds went DIRECTLY to Angiosarcoma Awareness, Inc. to be used for research.

If you have any questions, concerns or anything, PLEASE do not hesitate to contact Melissa Chinn. You can reach her at info@eyeonyoudesigns.com. At this time, we are encouraging Ryan to put all of his focus on his family and his health. We invite you to continue to keep up with his treatments and progress as he travels to Houston at the end of April for another Gamma Knife operation on his brain.

Thank you!

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It is STILL Another Birthday

april152015Sorry for the delay, and nobody wishes it were better news than me. Unfortunately, it’s not. This disease seems to be progressing, albeit slowly for the most part, but progressing. It’s not going to be the birthday we had hoped and prayed for, but it IS still another birthday. There’s something to say about that. One year longer is one more year of memories.

With that said, the new lesion is in the left frontal lobe whereas the other lesions were all in the right hemisphere. The report is attached to this messsage. As it reads in the impression, it is not entirely accurate. My clinical history and how it initially presents on MRIs is very important. These facts coupled with the fact it is showing in the left hemisphere which wasn’t present on the last MRI is troubling.

I needed a break. You have no idea how much I needed a break. I am a broken and beaten down man right now in many ways, but we shall fight on. We have no choice.

I have to undergo another gammaknife procedure. We waited around the clinic for awhile to see if they could fit us in this week, but it didn’t work out. We are now headed home, and will regroup tomorrow. As far as treatment, I have to discuss this with Dr. Ravi on how he wants to move forward. I promise to keep you all updated.

Please continue to pray, hard, for a miracle again. We love you all, and we need you more than ever.

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A Birthday Wish

Hello family and friends who love and pray for Ryan ~

Yesterday, April 13 – Ryan had his 67th round of chemotherapy. He is such a fighter. Today he is in Houston meeting with is medical team, and having an MRI on his brain to ensure that the chemotherapy has been working to keep the disease away! Results will be given tomorrow.

I think it’s fitting that one year ago today, he posted the below post. It’s a good reminder that even through all that he has faced in the last 5 years – he still maintains a positive attitude, a clear outlook on his future and a dedication and love for his family like none I have ever seen before:

What makes me happy, especially over the course of the past 5 years of fighting, is the coming togetherness of people. It’s not just for me, it’s for my family, but it still doesn’t stop there. The people and world I know are of friendship, compassion, love, understanding, respect, humility and strength. The vale of the web and anonymity of the internet creates a personality that isn’t real. People aren’t what is portrayed on the news, nor are people who fight, argue and thrust insults on FB or elsewhere really that way. Yes, we all say dumb things, but we learn. We learn from each other time and time again. If life were easy, it wouldn’t be called living.

In life, real life, people are reserved, respectful and full of compassion. This is the world I know. In all honesty, I don’t think it’s the cancer or my words or any person’s journey. We are led to believe we live in a world full of heartless creatures who have no understanding towards another. This fast paced world has us believe we only think about ourselves. I disagree, and that is not what I see every day. I mean, actually SEE and witness. We are a good people. Don’t ever forget that.

The support network I have is astounding, and it literally humbles me to my very core. It creates a sense of euphoria that not only assists in the mental battle, but the physical battle as well. It creates a situation where I have no choice but to keep moving forward against whatever odds I come across. From initial diagnosis, to rounds of chemo, to surgery, to brain radiation…. I never had a choice to give up. I never had a chance to second guess my drive to succeed and win against cancer.

Lord knows I was beat to a pulp many times by negative news. I have cried more times than I can count. I have held my family so tight and close so many times thinking the worst possible thoughts of death and a life cut short. Through the grace of God and through the love of the people in my life, I have always and am always able to get up, lift my head, and march forward. Together, we have always been in this together.

My happy thought today is the culmination of every single time I have been knocked down, and somebody has been there to help me out. I won’t give up. I cannot give up. For that reason, I am alive in every sense of the word.

Thank you for always sharing you. I love you, the lives you lead, and the love you show. This life is worth fighting for. Always remember that. (April 13, 2014)

Please continue to keep Ryan, Andrea, Landon and Logan in your thoughts and prayers as they go through the next 2 days of doctor’s appointments, scans, blood draws, etc., and GOD WILLING, for Ryan to have the best birthday gift he could ask for – celebrating his 33rd birthday on Thursday, April 16th  with No Evidence of Disease!!!

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Birthday Gift – Part 1

CT scan 03-2015Good afternoon, and a VERY happy Thursday to all of you. Part 1 of a 2 part birthday p
resent wish has been filled, thanks be to God!

NED!!!!!!!!!!!!!!!!! Clear scans. No evidence of recurrent or metastatic disease in my chest, abdomen and pelvis! smile emoticon

Life vs. Angiosarcoma – life is winning for us. We are blessed beyond measure. Thank you for loving and caring for us so much and for SO long. It’s an incredible day at our house, and we look forward to Part 2 of 2 next month with my MRI on April 14.

Every time this happens, we get a new lease on life. The feeling is exhausting, incredible, and miraculous.

We love you all, so very much.

Posted in Treatment Progress | 5 Comments

Starting 2015 NED

10425491_10205025616832777_3877645765900042513_nExhausted, but we made it to the airport safely and on time! And…..with GREAT NEWS!

I remain cautiously NED, but NED!!!! What.A.Relief! I cannot begin to explain.

Dr. Li was running 45 minutes behind which caused us to be behind with Dr. Lang. After we finished with both of them, I sent a last ditch effort to Dr. Ravi to see if he was available. Fortunately, he was! We met him in his academic office, and we all hugged with great relief and celebrated the moment! We have been blessed with the most amazing medical team with the most amazing expertise at their disposal. God is good, always. 2015 is shaping up to be a very blessed year.

The plan is to continue on chemo for the short term. Dr. Ravi said 4 months is the limit he’ll go with me on Temodar. He has had patients, especially younger ones, develop leukemia as a secondary malignancy. In case you didn’t guess, we desperately want to try and avoid that situation. 😉

We will be on our way home shortly, and we couldn’t be in better spirits. Thank you God for these life lessons, and getting us this far. Thank you, all of you, for keeping us so close to your hearts.

For those that can make it out to the wine fundraiser this Saturday for our family, we cannot wait to hug all of you, thank you in person, and raise a glass with you to celebrate this amazing year!

We love you.

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First Scan of 2015

Good morning and a VERY happy Thursday to all of you! We just received the phone call and subsequent fax regarding my scans yesterday……

N E D!!!!!!!!!!!

I cannot think of a better way to start 2015 than with the gift and breath of life. I cannot begin to describe the feeling one gets from something like this. There are truly no words to describe it, and trust me, I like words! smile emoticon

One scan down, one very stressful and difficult MRI to go next Tuesday. Unfortunately, the MRI from this time last year is what started it all for 2014. It will NOT be the same situation this year.

It’s going to be the best year yet!

Thanks be to God for giving me the body to endure a tremendous amount, the superb medical team to help defeat this, and the support group that can change the world. Such a miracle this all is……

Thank you for all of the love and prayers. We need them so very much. Houston, look out! Here we come!

Have a very blessed day. We love you all!

Posted in Treatment Progress | 3 Comments

Barre Class Fundraiser (Feb 9)

burn-bright

Burn Bright with the Dailey Method under the chandeliers of The Townsend Hotel ballroom!

Details: Please join us for a special 1-hour barre class in the newly renovated ballroom of The Townsend Hotel. Come early and stay late to network. It is a night to connect – your mind, body & spirit will thank you.

Monday, February 9, 2015
Doors open at 5:00 p.m.
Class begins at 6:00 p.m.

  • Live DJ provided by Star Trax
  • Stay after to enjoy a Skinny cocktail and sample a heart healthy salad from the Rugby Grille.
  • Wear yoga-style apparel and bring a mat if you own one.
  • Every attendee will receive a gift bag filled with an Endless Bracelet + charm and many other great surprises!

Purpose: Though exercise is good for our hearts, we are also joining together to fill the hearts of a very special family. Ryan Humphrey is a Troy native who is battling Angiosarcoma cancer that attacks the inner lining of blood vessels. A large portion of the proceeds of this event will go to Ryan and his family to help with mounting medical bills.

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Ticket cost: $50 per person.
Complementary coat check available upon arrival.

Main Contributors: The Dailey Method, The Townsend Hotel, Star Trax, Darakjian Jeweler and Lululemon.

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Wine Tasting Fundraiser (Jan 31)

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Please join Ryan’s family for a Wine Tasting Fundraiser Dinner at the Sycamore Hills Golf Club Banquet Hall. The doors open at 5:30 p.m. and dinner will be served at 6:00 p.m.

The cost is  $75.00 per person, which includes a plated 6-course meal with 8 glasses of wines served to compliment each course. Beer will also be available for purchase during the meal.

There will also be a 50/50 raffle, as well as a raffle for great donated or homemade prizes. All profits from this event will go directly to Ryan and his family to help them in this continuous 5+ year battle.

The commemorative labeled wines will be signed by Ryan Humphrey. These will be available in Pinot Grigio, Cabernet, Merlot and Chardonnay.

You may pre-order bottles of wine to be picked up at the event, however, bottles of wine will also be available for purchase at the event. Some wines may need to be ordered to be picked up AFTER the event. More information to follow.

Credit cards, cash and checks are accepted.

Cost is $75.00 per person.
Includes tax & gratuity.
Reservations required. Please call 586-598-9500 extension 2.

sycamore hills


Sycamore Hills Golf Club

48787 North Avenue map
Macomb, MI 48042
(586) 598-9500
www.sycamorehills.com

 

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Join the Battle: Angiosarcoma

CYCLE2015Please join us for our 3rd year of Cycle for Survival in Chicago!

donate_btn       join_btn

  • When: Saturday, February 21, 2015 (1pm-5pm)
  • Where: Equinox The Loop, 200 West Monroe Street, Chicago IL 60606
  • Who: ANYONE! We are raising funds to support research for Angiosarcoma.
    Whether you are near or far, you can join us by donating to our team.
    Feel up for a fun challenge, click here to join our team and ride with us!

We’re riding in Cycle for Survival to raise money to fund lifesaving rare cancer research at Memorial Sloan Kettering Cancer Center. Together we can ensure tangible progress and give real hope to patients and their loved ones worldwide.

Here are two important facts you should know:
100% of every dollar you give will go directly to pioneering research within six months of the events AND is tax deductible.

Cycle for Survival has contributed to more than 100 clinical trials and research studies, and also to major research initiatives that will change the way cancer is diagnosed and treated.

donate_btn       join_btn
To join the team, you will need the team password: curecancer
mskcc.convio.net/goto/BattlefieldAngiosarcoma

If you have any questions about making a donation, sponsoring our team or joining the ride, please contact Ryan Humphrey (517) 242 – 8146, r0humph1@gmail.com.

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The Best Gift

Hello everyone! I just wanted to post the news that was received this week when Ryan traveled to Houston for his 6-week post-op scans. He will be posting his own update soon.

scans
(click to enlarge)

Posted December 6, 2014 at 11:06 from Houston:

MD Anderson’s entire computer system was down so the consultation was delayed a while, but eventually it all came together. The results are in, and I am, once again:

NED!!!!!!!!!!!!!!!!!!!!!! It’s an unbelievable feeling, and nothing really compares. It’s truly incredible.

No evidence of disease!! The scan results were amazing.

Thank GOD!!! And thank you to all of you for continued prayers and love. You are truly amazing.

Posted in Treatment Progress | 2 Comments

Art for a Cure

Brooke B. Ogorek, a very good friend of Ryan’s, has put together an amazing art auction, of which ALL FUNDS RAISED will go directly to Ryan & Andrea.

The page with the artwork can be found at www.facebook.com/RaiseforRyan.

The Bidding Process

  1. Click on photo of the piece that you would like to bid on. You will see a description of the item, as well as the opening bid amount and bid increment.
  2. Please COMMENT on the photo with the amount you would like to bid as well as your email address.
  3. The auction will end on Sunday, December 7th. At which time, the highest bid amount will be the winner.
  4. Send payment by clicking here. You can pay with Credit Card / PayPal or mail a check.  An email will be sent to each winning bidder at the end of the auction with final instructions.
  5. Once payment has been received and cleared, your item will be sent to the address you request. The cost of shipping & handling has been included in the bid amount.

This is a Facebook-only art auction. If you do not have a Facebook account, please contact Melissa Chinn (605) 310-7563 or email info@eyeonyoudesigns.com and she will help you with the bidding process.

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On The Move!

Good evening again from Ryan’s hospital room! Today was a good day! The boys and I arrived at the hospital around 10:00am and were very surprised to be met by Ryan at the front door. What a great welcome! The boys gave him hugs and took some pictures and then we took a walk around the hospital. Ryan needed to sign some papers at the Sarcoma Clinic so the boys and I tagged along. While we were there, Dr. Ravi (oncologist) stopped by to say hello! The boys got to see Ryan’s room and stayed for a little while. It is so nice to see him up and moving around!

He is now unhooked from all the machines except his IV. They still use it to push the steroids. It’s so nice for him to be able to walk without pushing around an IV pole! The neurosurgery team came by this morning and changed his bandage and took out the drain.

This morning he received great results from his MRI. The radiologist report stated that the large lesion has been completely resected with no evidence of residual tumor. It couldn’t have went any better! :)

The good news just keeps coming! If everything continues the way it has, Ryan should get released tomorrow! He will also be able to take off the bandage around his head. I’m sure that will be much more comfortable. They wrap it very tightly and he said it’s starting to itch.

Thank you again for all the good thoughts, prayers, and messages! We have such an amazing support system. I’ll update again tomorrow, but I have a feeling my days as a guest blogger are numbered! :)

Posted in Treatment Progress, Uncategorized | 9 Comments

Day After Surgery

Good evening to all our friends and family! Thank you again for the continued messages, support, and prayers. They are amazing and much needed! As I am typing this, Ryan is still in the ICU. Dr. Lang has put in the order for him to be moved to the neurology unit, but he hasn’t been moved yet. We’re hoping sometime this evening!

When I got to the hospital this morning, the rehabilitation team was getting Ryan up and walking. He did such an amazing job! He walked about 100 feet and had no issues. They didn’t want to push him too much today. When he got back to his room he sat in the recliner and has been there ever since.

Dr. Lang came in first thing this morning to check on Ryan and change the bandage. They also removed his catheter and arterial line which was being used to continuously monitor his blood pressure. He still has two IV’s (only 1 is being used), pulse/oxygen monitor, telemetry monitor, and the drain coming from his incision. He is being monitored very closely!

At 5:00 this evening he will go for an MRI to check for any issues and it will show if the whole tumor was successfully removed. I’ll post the results of the MRI tomorrow.

As far as pain goes, he definitely isn’t pain free, but they have been able to keep it under control. He takes tylenol on a regular schedule and has only had to use stronger pain medication once last night. He is also on a pretty high dose of steroids to reduce the swelling in his brain. One of the side effects is not being able to sleep. He hasn’t been able to get much sleep the last 2 days. :(

It has been a relatively quiet and uneventful day and we hope to keep it that way! I will post an update tomorrow and hopefully by then he’ll be out of the ICU! Thank you again for following our story and keeping us in your thoughts and prayers! :)

Posted in Treatment Progress, Uncategorized | 7 Comments

Surgery Complete

Good afternoon everyone! I was hoping to never be in the position of guest blogging again, but not quite 2 years later here we are. First, I want to thank everyone for all the emails, texts, and phone call and prayers for both Ryan and I. It has kept my mind occupied during the very long wait today. When he is able, Ryan will love reading all the emails and texts on his phone. All the support and prayers mean so much to us!

Today started off bright and early. We were out the door at 4:45am for the walk to the hospital with surgery check in at 5:15. It was a very long and tough walk for me thinking about all that Ryan has to endure today. On one hand I’m so thankful surgery is an option for him, but I also feel helpless he has to go through yet another major surgery. He checked in and was immediately sent to a pre-op room to fill out more paperwork, meet with OR nurses, and anesthesia. They checked all of his vitals and inserted an IV. I was very impressed with his blood pressure! If I was about to have surgery on my brain, my blood pressure would have been very high! Everything was finished up a little after 7:00am and they wheeled him out of the room and down to surgery.

At 10:00am we received the update that surgery began at 8:25am. They had just made the incision and were still entering the brain. No tumor excision had started yet, but Ryan’s vitals looked great! They figured the surgery would take 6.5 hours.

At 12:00pm we were told the tumor was out and they were working to close him up. His vitals still looked great and Dr. Lang would be up to speak with us in an hour or so.

A little after 2:00pm, Dr. Lang came up to update us on how the surgery went. He said it went as well as expected and he was very pleased. He was able to remove the tumor in one piece. Ryan was moved to the ICU and I was able to go in and see him! He was awake and able to talk. I can’t begin to say how relieved I am!!! Its been a very long day of waiting and it feels like 100 lbs has been lifted off my shoulders. I will update again today if anything significant happens. If not I plan to update once a day to let everyone know how his recovery is going.

Thank you again for all the messages, prayers, and support! We appreciate it more than you could ever know. :)

Posted in Treatment Progress, Uncategorized | 25 Comments